Sunday, February 12, 2012

Wedding Bells and World Tour: Part I

Every little girl dreams about her wedding day. Every little girl puts herself in a gorgeous dress, with every last bit planned in perfect detail. It is every little girl's fantasy to be a princess, to find her prince, and live happily ever after.

I was no exception to this. I still hold out hope for the sweetheart trotting up on the horse, metal duds glistening as he sweeps me off my feet.

And as much as I have done in the past year to cancel out how much I've lost myself when I lost Mitch, I can't always do it. I stumbled upon a picture today that had my mind reeling, and of course, caused me to post.

When you ask little girls what they picture on their wedding day, not many mention an oxygen tank or the kind of excruciating pain that leaves you speechless. I'm sure the beautiful bride, Katie, and her fiance, Nick didn't envision these things either. These two had known each other since they were kids. At 21, Katie was living with terminal cancer, unsure of the time she had remaining. They decided to get married, and despite all that was happening to her, they did it. She was a glimmering example of hope and perfection on her wedding day.


With the ring that Mitch sent to me... I feel like we were well on our way to becoming that. It's eerie to think that if he had lived, how similar our story would be to theirs. A healthy groom, a sick bride, fighting against cancer, tank and everything. Their love is palpable. You can feel it radiating from every picture. In these photos, I feel like I'm there with them, celebrating their love. Nick lost the love of his life five days after these pictures were taken. He lost Katie... and I lost Mitch.

I can't imagine going through the ceremony, uttering our vows, not knowing that the words "til death do us part" meant a short 120 hours. "Death cannot stop true love. All it can do is delay it for a little while." That quote keeps me going day in and day out knowing that our love is just as real now as it it has ever been. It doesn't make it any easier however to come to terms with the fact that he's gone and I am without that person, "my person." As I've said before, I've never really expected to be in the situation, especially as the survivor. Something I'll just have to deal with as it comes. Ripples, tidal waves, I've felt them all.

A bit of a whirlwind weekend has come to a close. And regardless of all the sadness and pain that may have arisen from these pictures and story, I had a very positive experience with a very sweet oncologist. One thing that definitely helped was meeting Dr. C's colleagues at the Cleveland Clinic this weekend. What started out as a "workshop" was actually the chance to be evaluated by someone who is yet another expert in the field. I had coffee with this gentleman, the head of the department, Dr. R, one of Dr. C's closest friends. We sat and we talked. He can see me struggling, he knows how hard I am fighting. He understands the disheartened look that appears as I explain all of the treatment regimens (effective and ineffective) I've been through. He doesn't say much, but when he does, it means more than he knows. He has consulted with Dr. C on my case, discussing the most beneficial treatments for me. They have been in constant communication since Dr. C decided to take on my case. He did say one thing that stunned and comforted me. He said I looked different than he imagined. He didn't expect me to walk quite as tall, smile quite as much... be as much of "me" as I am. Dr. C told him I was a "spitfire," "a girl that burns with passion." With all that he has seen, he expected a broken girl. What he saw was someone who had never stopped fighting. He saw "a 22 year old warrior with unfailing kindness, compassion, and strength," to quote him. He said he was thankful for that... And so was I.

15 comments:

  1. Thank you for posting that story. It really shows just how loving and compassionate most people are. And how strong. Their 4-day marriage is not to be mourned, it IS to be celebrated. God bless them both.

    And you, my ovca sister (even though I am old enough to be your mother!), are exactly what you described: kind, compassionate and strong. It's a privilege to read your blog.

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    1. Cathy, I am always do blessed to see your comments on my blog. Thank you do much for the love and support. This post really put me in a dark place, but it was necessary. I need to feel this stuff in my time and I am fortunate enough to have great women like you by my side. :-)

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    2. You're welcome. You need to know that while you write out your feelings about dealing with this disease, you inspire women who are also dealing with it. That makes you a healer! I'm (un)patiently waiting for Part II. Hugs!

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    3. I think what meant the most from your comment (aside from making me feel like my kvetching does something positive) is your use of the word "healer." That concept means so very much to me. I'll see if I can't get working on Part II... I was going to wait for my second part of my "world tour" but I might have to get some thoughts down tonight. Thank you so much again for this. For everything.

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  2. i'm glad they got married. I hope you get married some day as well.

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    1. From your mouth to God's ears. I want marriage and children more than anything in the whole world.

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  3. Made me cry.
    I hate it that ovca strikes young as well as old. I'm of the older...and I've had the blessings of long life. It's not fair that it should strike the young.
    Keep writing. You are a blessing to me (in spite of the tears.)
    BTW...the wedding photos of Katie and Nick are wonderful. I see courage and strength and love therein.

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    1. I'm so sorry to make you cry. I know that sometimes I just need a good long, deep cry. Thank you for your caring and empathy.

      And thank you for telling me to keep writing. I sometimes wonder if I should stop and just take it all as it comes without having this outlet... and then I have blessings like you to remind me that it makes a difference. Thank you so much for calling me a blessing. I am so deeply touched.

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  4. Wow, what a courageous post, talking about lost love, living our dreams, experiencing the miracle of true love, no matter the circumstances. Bless you..................such wisdom comes from within you. You can still find love again and still marry.

    Peace,
    Denise

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    1. There is time, Denise. Regardless of how it might feel sometimes, I have time, more than most. Thank you for your sweet thoughts and heartfelt reminder that life goes on. :-)

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    2. I love that this couple celebrated the here and now. To live in the present is really hard (we're trained almost from birth to be planners)but somehow they did it and their love blossomed despite the challenges, and, I suspect, because of them.

      Without the lows we can't appreciate the highs. You have a gift of appreciating just about everything, and that's the gift you're giving us.

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    3. Michele! You posted! I'm so happy it finally let you! Thank you for your always encouraging words and spirit. I'm doing all I can to stay in the present and live life for what it is giving me right now.

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  5. Hi, I came across your blog for the first time tonight. How beautiful and inspirational you are! I am a stage 4 cancer patient, living in Australia. To write with honesty like you do, while fighting this hideously tough battle is amazing. Never underestimate the power of your words. You have helped me this evening with your compassionate story of love. Love is the glue between us all, the quantum or nano science, the reason why hummingbirds can hover in the rain. The few well chosen words, that the Dr C & Dr R shared with you, are the words of love. When people show you who they are, believe them. Hang on to these moments, the moments of love you can share with people. The ones who love you for eternity are watching and are VERY proud of you. I am going to share your blog on my blog walswords.blogspot.com if that is ok. The more people understand us, the more we can help others. Warmest regards, Juanita x

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    1. Juanita,
      Thank you so much for your love and support. It means so much to have someone like you (you are so sweet, very similiar to my other supporters) stopping by to say how much this means to them. I will never cease to be amazed by the kindness you all share and how much it means to you. I never guessed what works as a journal for me would be inspiration and support for those who are also going through it. Thank you for commenting on my honesty. There are times where I worry my honesty is too much, too blunt. And then I have wonderful people like you tell me it's what they need to see... it helps us know that we are not alone. Please feel free to share my blog if you think it will help. My heart smiles knowing that others might be helped. Thank you for making my day, Juanita. I will always think of you and send healing, loving thoughts your way!

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